National Associations

Down’s Syndrome Association

Down Syndrome Medical Interest Group UK and Ireland

Down’s Syndrome Research Foundation

Down Syndrome Education

Down Syndrome Ireland

The Makaton Charity

Signalong – communication charity


Contact (previously contact a family)

IPSEA (Independent Advisor of Special Education Advice)

Snap Cymru

Government policy

International Associations

National Association for Down Syndrome (US)

National Down Syndrome Society (NDSS) (US)

Regional Groups

Cornwall Down’s Syndrome Support Group

Downright Perfect

Portsmouth Down Syndrome Association

T21 Brighton & Hove

Seaford Down’s Syndrome And Special Needs Support Group

Down Syndrome Development Trust

21 Together

Kent Wide Down Syndrome Group

Bexley Down’s Syndrome Group

Downright Excellent


Downsyndrome Ok

South Bucks Down’s Syndrome Group

Inclusively Down

Ups and Downs Southwest

Swindon Down’s Syndrome Group

South East Wales Down’s Syndrome Support Group

Cotswold Downs Syndrome Group (Friends of Daniella)

Down’s Syndrome Oxford

Bedfordshire Down’s Syndrome Support Group

Down Syndrome Group Northamptonshire


Down’s Syndrome Norfolk

Solihull Down Syndrome Support Group

Up & Downs

Parents Relatives And Others Understanding Down’s (Proud)

Leicestershire Down’s Syndrome Group

Shropshire Down’s Syndrome Support Group

Nottinghamshire Down’s Syndrome Support Group

Lincolnshire Downs Syndrome Support Group (Ldssg)

Cheshire Down’s Syndrome Support Group


Ready Steady Downs (St Helens)

South Manchester Down’s Syndrome Support Group

RODS – Rotherham Organisation For Down’s Syndrome

Stepping Stones Centre

The North East Lincolnshire Down’s Syndrome Family Support Group

Bolton Smiley Faces

Huddersfield Down Syndrome Support Group

East Lancashire Down’s Syndrome Support Group

Wakefield & District Down’s Syndrome Support Group

Sunshine And Smiles – Leeds Down Syndrome Network

21 Co

Down Syndrome Training and Support Service

Downright Special

York Down Syndrome Parents Group

Down Syndrome Education Enterprises C.I.C.

West Coast Down’s Syndrome Support Group

Together 21

Upside Down

Upwards with Downs

Down’s Syndrome Scotland

Down’s & Proud